The Pediatric Patient and Family Advisory Council
Accomplishments
Since its formation in the spring of 1999, the Council is proud to have accomplished the following:
- Revamped patient passage through the Emergency Room;
- Changed the discharge process at Children's Hospital;
- Presented end-of-treatment initiative to the Clinical Conference Committee;
- Presented to the Visiting Committee on Patient and Family Care on the development and accomplishments of the Council;
- Conducted the Teen Survey;
- Published articles in Inside the Institute and Side by Side;
- Published Council Introductory Letter in new patient handbook;
- Met with key departments at Dana-Farber and Children's Hospital;
- Videotaped interviews for Japanese public television;
- Set up phone line for patients and families to access the Councils.
- Design of the Resource Room at Children's Hospital;
- Acquiring reference material for the Resource Room;
- Promotion of nutrition services at the Jimmy Fund Clinic;
- Promotion of complementary therapies at the Jimmy Fund Clinic;
- Working on passage of the Pediatric Palliative Care Bill;
- Consulting on the new phone system at the Jimmy Fund Clinic;
- Working on the Wait, an initiative to cut patients' waiting times for appointments;
- Developing an End-of-Treatment Transition Program;
- Providing an on-site Council member at the Jimmy Fund Clinic to discuss the role of the Council and to bring issues from families to the Council;
- Improved marketing to Patients and Families
